Today I taught how to use the G-tube to the nurse at his high school. I got the documents to have the nurse do it from the doctor, so the nurse can finally do it at school.
We’re taking the case of Ensure ($29 for 30 cans)that we bought at Costco, syringe, cup and water and we’re starting from tomorrow.
About 5 years ago, there were only the type of G-tube where you drop(drip) it in and it took some time, but now a syringe can be used, so it takes less time and is better.
But lately, there’s a certain part that’s concerning and worrying me. The clamp on the G-tube is loosening quite a bit. This is a very crucial part so I worry about what they’re going to do when it loosens even more.
I heard that there’s a thing called the Lopez Valve, so I think I’m going to ask this Thursday at the ALS clinic.
How are the people in Japan doing this?
Is it the same type of tube?
Translated by Christine Shirota