Oct 14, 2016

Thank you everyone!

Thank you so much everyone for coming to the graveside service today. Hajime and our family is now at peace in our own ways through everyone's loving support.

Oct 8, 2016

Live of Funeral

Hajime's Funeral Service (Live-Youtube)

Please check on Oct 9th Sunday.

Oct 7, 2016

Hajime's Funeral

A memorial service for Hajime will be held as following:

Date: Sunday, October 9
Time: 2:00 p.m. 
         *) Whoever wishes for viewing, please come between 1:30-1:55pm.
*) Reception will follow in Fellowship Hall. 
Where: First United Methodist Church of Pasadena, Sanctuary
Address: 500 E. Colorado Boulevard, Pasadena, CA 91101

A graveside service will be held as following:

Date:  Thursday, October 13
Time: 11:00 a.m
Where: Forest Lawn Covina Hills, 
Address: 21300 Via Verde Drive, Covina, CA 91724.

Both services are welcoming everyone to celebrate Hajime’s Life.

Please message Hozue Miyasaka for any questions. Thank you,

Oct 3, 2016

I miss you so much.

This is a first night without our most special young man.
It was a long long battle but too short for someone’s life.
After his body left from our house and turning off all of the equipment; a ventilator, an oxygen concentrator, nebulizer, feeding pump, air mattress etc; his room sounds as quiet as hell.
I know I don’t have to wake up anymore and run for any alarm goes off, but I feel I still hear all of the sounds.
I know I don’t have to wake up every hour to reposition you anymore. Now I don’t know what to do. I am totally lost. 
Hajime, I miss you so much.

Oct 2, 2016

Hajime in the Heaven

Hajime is on journey to the heaven.
Oct 2nd, 10:27 Everyone's beloved Hajime just passed away. We think his heart just stopped.
Thank you for your thought, prayer, help and support.

Jul 15, 2016

Hajime is good!

Hajime's condition is very stable recently.
Because of reasons, me and my husband take care for him.
Unfortunately we don't have nurse week day.
But we have night nurse since end of June.
Still finding daytime nurse. Please pray for something.

May 12, 2016

Ryo and Kiarra Prom 2016

Happy Mother's Day!

Happy Mother's Day!!
Hajime wrote "Happy Mother's Day" card in 2011.
This is my most precious treasure.  

I love you, Hajime.

Beautiful brother!!

Ryo's interview at SPHS

Humans of South Pasadena

"Don’t take anything for granted. If you experience anything bad, it’s a lesson—it’s nothing too bad. To me, I know bad. Over in South Pas, we have a really high academic record. Most people think it’s the end of the world if they don’t get into college. I was lucky enough to graduate this year. I think people take the little things too serious."

“Going into high school, my brother was diagnosed with ALS—which is Lou Gehrig’s Disease— it’s a neurodegenerative disease, so your motor functions die off and you end up immobilized, and basically it's a slow process of dying. It’s been progressing for like six years now. It was only supposed to be three years—it's been six years—he’s getting to the point where there’s no hope in getting him back. I feel like that was a big part of high school, and I struggled with it emotionally and academically. I was going through major depression. Junior year and senior year have been nice to me. I hit rock bottom, and I kinda got back up. It’s been a long four years.

I realized that when I was going through a hard time that, what I really needed to do was reach out and ask for help. My brother was a huge part of my life so losing that person I always talked with was a big loss for me. And also since he was the only person that I could really open up to, I never realized what great friends I have until I really built up enough confidence to open up to them. So I am really blessed with the huge amount of support I get from them.”

Ryo Miyasaka

Mar 3, 2016

Thanks for your prayer

Hajime's breathing is a little better since yesterday because we increased his oxygen. Thank you for all your prayers.

Feb 28, 2016

Breathing weaker

Hajime's breathing getting weaker and weaker day by day.

Feb 22, 2016

Still fight

Hajime's breathing is still low(difficult).
Still fighting with ALS.

Please pray for him!!

Feb 16, 2016

Pray for him

His breathing is hard now.
Please pray for Hajime!!!
I hope his breathing get well soon.

Feb 12, 2016

Hajime has fever

Hajime's breathing has been weak for the last week.
For that reason, his heart rate and blood pressure was high.
Right now, he has been getting a fever everyday.
According to the doctor, all of this is happening because
Hajime is slowly declining.
Please keep him in your prayer.

Feb 4, 2016

Has infection

We found out that he has an infection.
He also has a fever, high blood pressure, and high heart rate.
Overall, he is in a bad condition.
Please keep praying for him

Jan 16, 2016

Still fighting!

Fortunately Hajime had his 23rd birthday this month on the 8th. He had many problem last year. He sometimes he had dangerous blood pressure problems. But he is still fighting the disease, ALS. Please help Hajime.