Today, our three kids went to see the movie, called "Rio". Since Hajime became adult, we can do that.
Before they went out to the theater, Hajime looked up and we realized how his neck muscle was getting weak. I felt very sad knowing how this thing is happening...
He looks very painful when look up and his muscle seems not strong enough to support his neck/ head and its weight. When he looks up, he even needs to use hands to hold his neck.
His legs look still strong and I believe no whole-chair is needed any time soon. However, if he keeps losing the neck muscle, he may need the whole chair.
Please God, please do not let Hajime’s muscle go away any more.
(translated by YM & RM)