It’s been a few days since the incident at the nighttime but I’m still being afraid when the night comes.
Although, Hajime is doing pretty well and that is our relief at least.
We have a helper to take care Hajime. Her name is Tammy.
She is sick for a while recently so right now my husband and me are the only one to take care Hajime. We are doing ok so far but hopefully she will come back soon.
Lately, Hajime is watching MACROSS (ROBOTECH) DVD all day. His grandparents brought it from Japan recently and on top one of our friends gave him another DVD as a gift so he have a couple of DVDs now.
He is watching those DVDs all the time.
It is getting less frequent to play games now. It is mostly because his strength of legs is getting weaker and he has a hard time lifting his foot.
He used to draw up his knees when he plays game but right now he only can do on his right knees.
Because of this weakness, conversations using tobii touch screen getting less too.
ALS really brought the tragedy to all of us.
I pray every single day to stop progressing his disease.
(Translated by HM)