Today, the 15th of November is Hajime's younger brother's birthday!
First thing Hajime did this morning was to type “A Happy Birthday”
to his brother with his tobil.
Celebrating his birthday together as a family was really nice. My husband's birthday was spent at an intensive care and we weren't able to anything to celebrate.
However, Hajime was sad not being able to join us for dinner or to eat the birthday cake with us. It is hard that he can't eat.
We had a helper from Keiser for giving Hajime bed bath. Normally, she does it by herself, but she asked me to stay today. My husband helps out at night, but he was very exhausted as he hardly got any sleep. It is not easy to operate the equipment to clear his secretions every several minutes. I am wondering if we should ask the helper to handle the night time.
Heavy secretions is a serious issue and I am concerned for his condition in the future.
(Translated by Yoko B.)