His Teeth Are Wearing Down

About his teeth...last time, the problem was that his teeth were starting to spread apart, but now his teeth are wearing down.

In the doctor's opinion, his teeth may be wearing down because they aren't being used, in the same way that bones become thinner if they're not used.

And, his bite is much more misaligned than before.

We must always keep his bed upright, and since he can't support his head, his teeth gets out of alignment.

They decided to wait and see and keep an eye on these two issues.

Until they find a treatment for ALS, I will always be anxious about what other problems may arise.

We can't do anything about his teeth until he sees a dentist.  And I wonder if there is anything we can do to prevent his teeth from wearing down.
We must remember to keep brushing his teeth to keep his gums strong.
I think we are being very diligent about his oral care but...

Are there any ALS patients with the same symptoms?  


(Translated by MS)

He Is Stable

Hajime is very stable now.

But his nose is very runny...so runny that I almost can't keep up with the suctioning.  At times, it is greenish, but I think it is more often clear.
When I suction the trache,  it is green at the beginning, but later it becomes clear.  That's why I am not too concerned.

The caregiver has improved since the last time, and she is cheerfully communicating with Hajime again.
I can't be too harsh with her because I don't want her to quit on us.  I'm trying to deal with her with the future in mind.   

The sakura are in full bloom in Japan now.
I wish I could let Hajime see them.


(Translated by MS)