Yesterday, the day nurse wasn't feeling well so she went home before 2:00 pm.
Later, Hajime was crying and his eyes were red.
Every single day is the same thing, this endless routine. But even then, he hasn't been crying recently.
He is hanging on to the one hope that he will recover.
But it is also important to cry. I grasped his hand as he cried.
I held onto his hand as I talked to him for about an hour, and then he started to smile at my jokes. I was relieved.
I knew that I should be setting aside time for him like this.
I really am terrible.
I usually don't cry, but when I see Hajime crying and I see his hands, I can't stop crying.
Hajime has taught us so many things.
God is right beside Hajime even now and speaking to him.
(translated by MS)
Please tell Hajime hey for me:)
ReplyDeleteI have a loved one with ALS and I know how hard it can be to deal with it. I'm sure you've heard of the sodium chlorite trials ALS patients have been trying at home, but I wanted to tell you about it just in case. It's not a cure, but some people have had small improvements from trying it & it might be worth a try for your son. You should definitely research it & see what you think.
ReplyDeleteAlso, patientslikeme.com is a really good site to read about what treatments other ALS patients are trying & what is working or not working for them. Despite what anyone says, there's lots of hope out there, so never give up!
Hello Hozue,
ReplyDeleteI found out about Hajime's life and story while searching ALS on YouTube.
Thank you to everyone who has supported and who will support Hajime and his family through such challenging times. I pray that you will all find healing and peace. I also pray for a cure and a miracle, for recovery. Hajime is a beautiful human being and he is noticed and loved. Thank you for all that you do.