I Want to See the Stars

We went to San Diego as a family from Friday. It is indeed settling and calming in that little time that we go out as a family.

And on Saturday, we went to a friend’s house. Everybody in our family is so touched by my friend who welcomes us every time. They truly are a kind family.

After we left our friend’s house, I saw the night sky that was filled with stars. It was a very beautiful star studded sky.



Our family said “Wow it’s so beautiful!” with excitement in our voices.

But Hajime couldn’t look up and he looked sad. “If my neck muscle didn’t weaken, I could see this beautiful sky…”

I noticed Hajime, so I supported his neck, held his head and turned his face toward the night sky.


We were reminded again of how blessed we are, to be able to do the daily things that we take for granted.

The happiness from being able to see the night sky.

I want to show him much, much more stars.

Translated by Christine Shirota

Mom, I Feel like I’m Going to Faint.

Today was the day of Communion at church.

Hajime went to church as usual and wore a robe to worship service. Service started and right when it was about to end he started trying to tell us that something was wrong.

He said, “I want to talk to Mom and Dad”…and he didn’t want anybody else to hear.

But we couldn’t understand what he was saying at all. We couldn’t pick up his words. Hajime held his head and had his eyes closed. I was almost able to feel his pain and frustration through seeing him trying to hold his frustrations back.

He was frantically trying to text us with his cell phone, but because he’s not used to it, he kept on entering and deleting, entering and deleting and all he could get out was,

“Mom, I feel like I’m going to faint.”

He was able to tell us just this short sentence.

Because Hajime hasn’t been sleeping enough, it seems that he’s exhausted to his limit.

So, he couldn’t serve at the church communion, he rested in the car, and when we got home he slept the whole day.

Hajime is rejecting using the device. Is this one way he’s denying that he has this disease?

Translated by Christine Shirota (American English)